Thursday, December 20, 2012

Update on Nick 12/20/12

Merry Christmas to you all!

Nick and I were in Birmingham for another clinic visit, chemo, and IVIG on Tuesday of this week.

The visit itself was uneventful. Nick’s blood work looked good. The doctor mentioned that he was still waiting to see what Nick’s iron and iron binding capacity levels were. Since the doctor never mentioned it again, I am going to assume the levels either stabilized or were even back into the normal range. No news is good news!

Nick seems to be feeling okay post chemo. He has been a little more tired this time, but that is to be expected.

The next step for Nick comes on Friday, December 28. Nick will be having extensive PET scans done at Children’s Hospital. The scans were approved by insurance. Go figure... Anyway, the kids and I will make a quick trip down and back just for the scans. We don’t have to go into clinic that day or anything.

At this time, I do not know when I will have the results of the scans. It will likely be some time the following week. Nick’s next chemo treatment is scheduled for Jan 23.

Keep the surgeons in prayer as they are literally combing through these scans. They will be making the decision about surgery to remove the mass from Nick’s lower abdomen/pelvic area.

Also pray for the oncologist to have discernment and wisdom as he looks at the scans. He told us, not too long ago, that we are in uncharted territory and there really isn’t a treatment protocol for Nick’s illness. 
These scans will help to determine how we need to proceed.

We have been doing okay. I had the flu last week. The kids have both had the sniffles at various times. So far, neither of them have come down with the flu. My prayer is that we can avoid that and the other yuckiness that is going around.

The kids will be out of school for Christmas break tomorrow. Nick will be one semester away from graduation. WOW!!! So hard to believe that it is getting so close.

Kacie will be turning 13 on Jan 3. That’s another big milestone that is difficult to believe is already here.
I hope and pray that each of you have a very blessed Christmas.

As always, we remain...

In HIS Grip,

Kristy Baxley

1 comment:

Gmama Jane said...

I'll be anxious to learn what the scans say. I'll be praying for the doctors to have a supernatural *eye* when looking at those scans as well as the knowledge to know how to treat Nick. He has lived his whole life from one scan or test to another. All of you remain in my prayers as God will bring you to mind and I stop to pray. Hope you can find time to sew with us soon. Sewing/Quilting are good therapy.
Love to you and Nick and Kasey